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Author Topic: Very happy with our Vanderbilt ENT  (Read 1464 times)
jowen
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« on: December 26, 2015, 05:50:06 PM »

My 17 year old daughter had her cholesteatoma surgery 1 1/2 weeks ago at Vanderbilt Children's Hospital. After much reading and searching, we choose Dr. David Haynes, the head of ENT at Vanderbilt. He solely focuses on ears, especially cholesteatoma and cochlear implants. He has been doing research and surgery on these conditions for many years. Dr. Haynes visited with me via telephone during the decision making process and was extremely patient and kind in answering my questions. My experience was the same with him during our office visit and after her surgery. He takes all the time you need and tries to help you understand all that is involved. My daughter's cholesteatoma was much larger and more invasive than he expected. He replaced all 3 ossicles; and grafted a new eardrum, and canal around the eardrum. The cholesteatoma was wrapped around her facial nerve and he was able to get it off with no damage. She is just now more like herself and having less pain. We return to the Dr. next Monday and will begin to know her medical progress and at some point, how her hearing is. So far in this process, I highly recommend Dr. Haynes!
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lisa
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Posts: 1


« Reply #1 on: February 19, 2016, 03:27:04 PM »

Hi
Did your daughter have the CWD surgery?  Is she limited on activities like swimming?  My 13 year old has had 3 surgeries and it keeps coming back - she has infection that they can't clear up with antibiotics so going to infectious disease center at University of MN next month.  I am a nervous mom and this has been going on for almost 4 years now....  Also taking her to Iowa to see Dr. Gantz for second opinion and to see about his surgery which sounds like what your daughter had done. Any information about your story helpful... My daughter has 2 hearing bones gone and retracted eardrum - her eustachian tubes just suck it all back in....Her c-toma was large when discovered as well - It did not affect facial nerves, but worried it is growing more now that she has this infection in her ear....she is not in any pain and seems normal!  Thanks
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