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Author Topic: Does the feeling in your ear ever come back?  (Read 3244 times)
Hudie
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« on: June 15, 2011, 06:31:39 PM »

Hi everyone!

I am a week out of the first of my two surgeries needed. I am in more pain then what was expected and I have a completely numb ear and all the area around it. I do have a pretty sharp pain around my temple and about an inch above my ear lobe. I guess I am pretty good for the most part unless I start to do something then I get the feeling like I am at the verge of either throwing up or passing out. I haven’t passed out or fell down but as soon as I start to get that feeling I sit down. I have a taste problem that sort of feels like when you burn your tongue and then eat and you can’t really taste what you are eating. I also noticed it gets more extreme when I start to salivate. 
My Cholsteatoma seems to be the typical story about all of them I have been reading. The catscan says one thing and when they open you up it is much worse. Mine eroded the hearing bones and the wall around my facial nerve but also worked its way into the ole balance sector of the noggin. They were not able to remove it completely like they hoped so I have a second surgery in December for a second shot at it.
Any feedback from anyone who has taken this journey would be great.
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Deb
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« Reply #1 on: July 03, 2011, 07:39:06 PM »

Hi Hudie !

Just had my surgery June 28th.  Same as you, the cholestiatoma was much larger than the scans had shown.  My surgery was supposed to consist of the c-toma removal and rebuilding of the hearing bones but after 3 hours just for removal, they had to end it without reconstruction.  Mine had also erroded the facial nerve lining and was poised to do real damage to the nerve.

I currently have little pain but the vertigo/dizziness is terrible.  I can only walk within the house and very carefully at that.  I sure hope this subsides soon.

As for the taste/feeling in the tongue, the left side is still numb-ish and yes, nothing tastes quite right.

I have a small incision at the top-front of my ear, they enlarged the ear canal and it now has a "plug" in it for 2 weeks.  At the 2 week point, the stitches are to be removed and a new "plug" put in the canal for another 2 weeks.  I have feeling all around my ear but it's a numb-ish feeling.

At that point, My Doc and I will discuss the options of either rebuilding the ear with another surgery or opting for a hearing aid.
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KMA1957
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« Reply #2 on: July 21, 2011, 12:49:35 PM »

The feeling around your ear should come back, at least it did for me.  there are a lot of nerves running along that area.  Nerves have a way of regrowing.  as far as the taste thing?  i didn't have that issue hwoever i did have the vertigo that also went away after a bet.  hang in there.
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Royt777
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« Reply #3 on: June 27, 2012, 06:14:26 PM »

when I had my 1st op in Feb 2011 the feeling in the ear was weird but after some months, either I got accustomed to a new sensation OR it reverted to it's original sense.

My taste was affected and I would say that 18months later (today) it is still not what I would call "restored". But it is ok. I can enjoy foods mostly. I never really ever had a very discerning taste pallette but I would say mine is better than after surgery, but still not as good as it was before.
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