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Author Topic: Third Time  (Read 2349 times)
mhlyons
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« on: April 09, 2014, 02:51:17 PM »

Hi, my name is Mary, 50 years old single parent with a 15 year old still at home.  When I was 17 that is when I had the first one in my right ear. Surgery was done to remove the tumor. They said it was so big it was touching the brain.  A new eardrum was formed out of the cartlidge of my outer right ear.  They were saying I was like one of the first this was done with.  I had to go back in a 2nd time 2 years later because apparently some of the growth was left behind from the first surgery.
I have been falling down a lot and when you are 50 and overweight it really hurts bad.  It seemed I was falling every 2 weeks.  My primary sent me to an ENT and I told him to be careful the ear stunk like something died.  And 3 weeks before that I had woke up to my ear bleeding.  And guess what he found. :'( .  After 30 years I have another one. Next week is CT Scan to see how big it is and see if it is touching the brain so he can decide whether to do invasive or non-invasive surgery.
I am scared.  Oh the part I didn't tell yall was I coded on the first surgery.  Words stay with you a long time.  Another thing that has me bothered is each time your brain is exposed to air, it can kill brain cells.  Hey this 2014 maybe they have come along way since the earlier days.
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Bilateral
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« Reply #1 on: April 12, 2014, 11:51:08 AM »

Hello Mary,
My story is similar, 36 years later a tumor grew in my other ear. Is your tumor in your right ear still or did it go to your left? And yes things have changed in 30 plus years. I had a bone anchored implant done before the removal of the second tumor. Thank goodness for technology or I would not hear. Both my surgeries were of the invasive type because there is less chance of it coming back and if it does it can be taken care of in the doctors office. Wish you the best of luck, I know how hard it is to face again after so long.
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