Cholesteatoma Message Boards

General Category => Cholesteatoma Discussion and Topics => Topic started by: BaKa1020 on June 24, 2016, 07:45:57 AM

Title: Congenital Cholesteatomas between parent and chold
Post by: BaKa1020 on June 24, 2016, 07:45:57 AM

I am an adult having had her first mastoidectomy and wall down procedure at 4. I have had life long care and complete hearing loss in my left ear. My father had the same exact surgery and issue (just much older). As you can guess we both of congenital cholesteatomas. I now have 2 daughters, and brought up my concerns to their ENT, they seemed to have dismiss this as pretty rare.

Are there any other people out there that have congenital cholesteatomas that they passed onto their children?

Thank you!