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Author Topic: hearing gone - goodbye bones & eardrum  (Read 2368 times)
steve
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« on: June 04, 2013, 06:46:26 AM »

Due to the severity of my cholesteatoma in my left ear I was left deaf in this ear and wobbly (vertigo).  Cawthorne cooksey excersises helped cure my balance and I got used to only having one good ear.

After 3 wall up procedures to clear me of the cholesteatoma and 5 peaceful years, my faulty euastachian tube has pulled another cholesteatoma into formation.

As I have no hearing in this ear my specialist has decided to take out the bones and ear drum and seal up the ear with fat tissue from my belly (all those beers paid off)!!

I was given the wall down option but he thought I might be blighted with constant infections.

Has anybody else had the remove everything op' and what was it succesful???
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steve
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« Reply #1 on: September 27, 2013, 04:23:17 AM »

I know there are likely to be very few people out there who are likely to have this done, but here is my current experience in the hope it may help those who do.

My operation was on Monday and was described as a 'Mastoid Obliteration'.  For some people the mastoid is reconstructed after a some years but for mine it has been removed indefinitely.

As I have no hearing left in my affected ear, and have had 3 previous surgeries to remove cholesteatoma it was decided to have this procedure.

My ear canal, mastoid, ear drum and conductive bones (ossicles) have all been removed and the mastoid replaced with tummy fat from my belly.  Were you to look into where my ear canal was you would now expect to see a belly button where it has been sealed up.  The cavity (at the other end) where my cochlea is has been left sealed dry with my eustachian tube plugged.  Follow up MRI after 2 years to check all skin cells have been eliminated from the mastoid area.  The reason for tummy fat being used to replace this area is to help skin cells show up on future MRI scans (better contrast).

4 days after surgery I am starting to feel more normal.  Things are still swollen and sore, but feel better today.  I know it will take a bit longer to recover compared to my other op's due to the extent of what has been taken out.

Hopefully when all is healed I can continue life knowing that cholesteatoma is never able to come back in this ear.

Thoughts are with U all.
Steve (UK).
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Humbernyui
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« Reply #2 on: February 12, 2015, 02:15:44 AM »

You have so much credibility.
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