Cholesteatoma Message Boards

and

Cholesteatoma Topics

October 23, 2017, 07:30:03 AM *
Welcome, Guest. Please login or register.
Did you miss your activation email?

Login with username, password and session length
News: Please message me (username: admin) if you see spam type posts.  I will go ahead and delete them.  Thank you for your help, and stay strong.  -  Jeff /Cholesteatoma - Cholesteatoma.net Home Page
 
   Home   Help Login Register  
Pages: [1]
  Print  
Author Topic: New to all of this/Suspected C-toma.  (Read 1927 times)
salgal
Newbie
*
Posts: 1


« on: May 17, 2014, 03:03:48 PM »

Hi! I live near Seattle, WA and have had ear problems my whole life.I have Eustachian tube dysfunction and a deviated septum. I had tubes as a kid and many ear infections as a child and even as an adult....repeated eardrum ruptures. I've always had reduced hearing, but now at 40, I have moderate hearing loss, stuffy/plugged ears, occasional discharge and headaches.

In 2005, I had a parotidectomy a tumor in my spit gland. ENT found it when I was having problems with my ears/sinuses. 3 months of antibiotics and steroids. Saw and allergist. It seemed to mostly resolve itself.

Then 4 years ago, when I went back in for ear/sinus infection again, the same ENT told me I might possibly have a c-toma, but the ct scan came back not showing anything. He was pushing sinus surgery at the time so I just stopped seeing him.

Then during my entire pregnancy in 2012, I couldn't hear a thing. Stuffy/plugged ears and no one could tell me what was going on. Maybe blood volume due to pregnancy. Even after giving birth, I still have the problem. It gets a bit better occasionally, but never completely clears up. I switched ENTs and this one said moderate hearing loss due to my middle ear. Inner ear seems okay. I have a build up of skin on the outside of my ear drum and when she tried to remove it, I had vertigo. Twice, two weeks apart after ear drops to soften it. She stopped suctioning and suspects a c-toma connected to the middle ear bones. Now I'm off for another ct scan. And most likely a referral to a Otologist/surgeon in Seattle at Swedish Medical Center.

I am glad to see this message board. I used one during my parotidectomy too and the feeling of not being alone in this is priceless. Even tho, I don't know any of you.... thank you for being here. This whole thing is very scary.
Logged
Pages: [1]
  Print  
 
Jump to:  

Every one of you is strong. Always fight, and never give up. Your best years are ahead of you.

This page sponsored by: GoMain , a startup in Spokane, WA committed to mapping Electric Car Charging Stations and Gas Stations

on the GoMain Network , to improve drivers access to useful information while traveling.

Powered by SMF 1.1.14 | SMF © 2006-2011, Simple Machines LLC