Thought I would post a mid way follow up in case anyone is reading this...
The ENT also confirmed something "white behind the eardrum" and ordered 2 tests: hearing test and ct scan. Hearing test was done at his office and she passed everything. I am very encouraged by that news. The CT scan was done Friday (4/1) and I delivered the results to the ENT's office the following Monday (yesterday). The doctor should be calling me soon but I know he has 6 different offices so I'm sure it will take some time for him to get to that office, review and call me.
During the exam, I asked the ENT what it could be. He said it may be cholesteatoma but her's would be congenital since she has never had any ear infections or problems. He said but it may also be an osteoma that will either go away on its own or small enough to not require any surgery.
I am anxiously awaiting the call from the ENT as l am very confused. I have been called the "Google Queen" by loved ones, so I have been scouring the internet researching and this is what I've found the possible causes might be:
middle ear ostomas - are rare and usually occur in people that swim in cold weather - Does NOT apply to my daughter BUT it is viewed as "white"
congenital cholesteatoma - again rare, hearing loss is common (does not apply) and is viewed as "white"
Glomus tumor middle ear - Hearing loss common and is viewed as "red" - Both does not apply
Tympanosclerosis - Viewed as white and chalky but is ON the eardrum, not BEHIND it
Another concern is the actual CT scan films...I had them for a few days so I tried my best to interpret them, but of course, I did not have much success!
The only thing I did not like was one film in particular - In my very-unprofessional opinion was a mass that started off small in the first frame then each frame following was enlarged bit by bit. AHHH, I'm trying to remain positive but I want to be prepared for the worst. :'(