I have had two cholesteatoma's, the first at 17 and my second at 53. When I was 17 they didn't have the technology they do now. In August of 2013 they found another c-toma in my good ear. I also was in fear of being deaf. Before they took the tumor out I had a bone conducting implant put in to my skull. It was a fairly easy procedure and without it I would be deaf. I am so grateful to my surgeon and his support staff of audiologists. So there is hope, even if you lose the middle or inner ear.