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 on: April 25, 2015, 11:20:25 PM 
Started by invisibleink - Last post by SEichner
Hi.  I was wondering how you are feeling now that it is another month since you posted.  I just found out that I have a c-toma also and will be going to the House Ear Clinic in Los Angeles, to find out what my surgical options are.  I've only heard about a canal up or a canal down surgery, not an endoscopic surgery.  What is that, so I can ask about it when I go the clinic?  Is your hearing any better yet?  Was the surgery very painful?

 on: March 25, 2015, 03:48:34 PM 
Started by invisibleink - Last post by invisibleink

I was diagnosed with c-toma few months back on my left ear. I had an endoscopic surgery done 2 weeks ago. Doc said that he removed a large c-toma, took the bones out, cleaned and put them back(amazing if he really did so). A few days after I was able to get back to life with some minor dizziness, balance problems. However, my hearing is very little recovered since day one. I was wondering how long it typically takes for hearing to get better after the surgery? I am 29 and really concerned.

 on: March 20, 2015, 12:24:16 AM 
Started by ladyvee - Last post by ladyvee
I had lived with an undiscovered c-toma for about 5 years. I had the constant pain, ringing, fullness, multiple ear infections, yucky drainage and some days loss of hearing. I was finally diagnosed and the specialist removed a large one out of my ear. This was done in the office with just novacaine. A ct and an mri was done and it was only found to be in the external ear canal. I followed up with him 2 weeks later. It had destroyed the shape of my inner ear and made it a prime ground for more to develop but he was confident he got it all.
I went back 4 weeks after the removal and the doc did not like the way that area looked...he did a biopsy and the report came back as a differential diagnose of either c-toma(duh) or malignant cells. The doc said it must be remnants of the c-toma and suctioned out my ear and had me return in one month. Which I did and I went back 4 weeks later and...
There are now 3 spots in my ear that look bad and look as if c-toma's are forming. He took biopsies of the 2 new areas, While doing so the novocaine did not work and as he pulled the tissue off(very painful) he gasped and said that the new spot was down to the bone and that bone was now exposed from the diseased patch of skin and numbing my ear was no longer going to work. It is the bone along side my face, in front of my ear, and ever since then, my face feels funny and my retainer doesn't fit right on that side and my jaw hurts alot.
The biopsy report came back the same as the is either a squamous cell carcinoma or a c-toma? The doc says it's not cancer and is making me wait another 4 weeks to be seen again. I am so scared! is there anyone that had a biopsy read this way on their c-toma? I don;t understand how I can get 2 new spots in 4 weeks, when it took over 4 years for the first one to form? No other doc in cincinnati will see me and I just got word that my doc decided to retire and now they ahve to find a doc that can help me! i am angry, in the begining it was found in the back of the ear canal and my face was it's near the face and i am having problems! Please help! i would feel better if someone somewhere had a biopsy that read like mine!

 on: February 24, 2015, 01:47:15 AM 
Started by Marie - Last post by Elobangky
Everything in this world is always beautiful.

 on: February 24, 2015, 01:30:41 AM 
Started by Sky Kitty - Last post by Elobangky
solution have is always Do not worry.

 on: February 12, 2015, 02:37:15 AM 
Started by Joey - Last post by Humbernyui

 on: February 12, 2015, 02:15:44 AM 
Started by steve - Last post by Humbernyui
You have so much credibility.

 on: February 04, 2015, 11:22:12 PM 
Started by cochrankids - Last post by Killercallously
Where to learn more.

 on: February 04, 2015, 11:15:29 PM 
Started by Marie - Last post by Killercallously
I want to ask about this increase.

 on: February 01, 2015, 10:37:53 PM 
Started by cochrankids - Last post by blackbearyz
Your information, I have to say, and then it turns out that it is true.

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