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 on: September 08, 2013, 05:01:36 PM 
Started by LauraChesh - Last post by rivrlivr
Douglas Bigelow in Philadelphia, PA HUP hospital.

 on: September 02, 2013, 08:11:36 PM 
Started by LauraChesh - Last post by LauraChesh
Hi, this is all new to me, my husband has a Cat scan scheduled tomorrow to verify he has a cholesteatoma. Can anyone recommend a great doctor? We live in NJ but will happily travel to tri-state area or further if needed.  I've read about a Doctor in Albany that does this surgery with lasar. Anyone have any input on Lasar surgury? Thanks!

 on: August 31, 2013, 08:06:33 PM 
Started by georgecorry - Last post by georgecorry
I had a CWD procedure done 25 years ago and have made annual visits to my ENT in Atlanta, Georgia for cleaning.  For several years, my doctor and I have discussed having my mastoid filled with a muscle flap to prevent periodic infections.  As an added bonus, I am told that it would somewhat improve my ears appearance.  I would like to know if anyone has had a similar procedure done and what I should expect from the results.  Thanking you in advance for your thoughts.  

 on: August 22, 2013, 08:25:23 PM 
Started by az602chick - Last post by az602chick
I found out in November of 2011 that I had a cholesteatoma in my right middle ear, and had probably had it for quite some time. I had my first surgery in January of 2012 and in a matter of 12 months I had seven different surgeries on my ear. I developed a severe case of staph infection as well and had to have a picc line put in, which was replaced four times before being removed. But because the infection was so persistent I then had to have a portacath placed in my chest, but it was not surgically put in correctly so I had to have it redone 2 weeks after it was first placed. I have definitely had a a tough couple of years. The dizziness and headaches are so bad i cannot function normally anymore. Between the cholesteatoma and the many surgeries i have lost all my hearing in my right ear and i no longer have a sense of balance. I have "dizzy attacks" randomly and cannot complete normal living tasks on my own anymore. I am no longer able to work or drive, cooking a meal or folding laundry has become too difficult to complete. I have lost my sense of independence and have learned that life does not always go as you planned it. I just turned 26 years old and have had to file for disability. I was a preschool teacher and ran an after school and summer program for special needs children, and can no longer work. And to top it all off I found out about a month ago I need to have surgery yet again on my ear because it is draining and they believe either the tumor or the infection is back. But because of the extensive amount of scar tissue the MRI cannot confirm either one, so surgery is my only choice. BUT my ENT/surgeon whom I have had since the verh beginning has taken a job in another state, so I now have to see a new doctor. That alone is making my nerves and anxiety out of control. I am just frustrated and miserable at this point!  Cry

 on: August 21, 2013, 01:14:08 PM 
Started by STmomma - Last post by STmomma
We just found out today that our eight year old son has Cholesteatoma in his one ear.  They noticed something odd in December, but fluid blocked the ability to see it.  Today at the routine follow-up confirmed the Cholesteatoma.  We never heard of this before and are besides ourselves with concern and worry.  Has anyone seen Dr. Lee at Mass Eye and Ear?  I see that Dr. McKenna is highly recommended, but I don't know if he does pediatric surgeries.
What can we expect from the surgery?

 on: August 15, 2013, 08:45:54 AM 
Started by optinel - Last post by Cholestear
Dr. Thomas Haberkamp is wonderful - and is at the Cleveland Clinic in Cleveland, OH - and I've heard that Dr. Arun Gadre is great as well - in Louisville, KY.  Both are specialists in cholesteatoma and are otologists/neurotologists. 

 on: August 13, 2013, 03:14:15 PM 
Started by chipke - Last post by chipke
Does anyone know which surgeon in Belgium is most experiences with cholesteatoma ?

I read about the endoscopic technique. Anyone know any ENT surgeons in Europe, Belgium that use this technique ?

thank you !!!

 on: August 09, 2013, 12:04:45 PM 
Started by optinel - Last post by optinel
In need of GOOD surgeon--Any advice=> PLEASE

 on: June 26, 2013, 08:33:40 AM 
Started by andrew48 - Last post by Cholestear
Update regarding Dr. Tarabichi.  In addition to Dubai, Dr. Tarabichi also practices in Wisconsin in the US -  It is a much less invasive procedure than the traditional canal wall up/canal wall down.

 on: June 26, 2013, 07:10:40 AM 
Started by breadmom - Last post by Cholestear
I just found that Dr. Tylor now practices in Fremont, CA - (San Francisco Bay Area).  Just wanted to put that on here in case someone is trying to find her.

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