Hi Larsson 101,
I am coming out of the 'stunned mullet' (Aussie) or 'deer in the headlights' (Montana) stages. My 19-yr old has bilateral cholesteatomas. R ear first; surgery scheduled for December, scutum tip, malleus and incus are gone. L ear in April, severe erosion of the malleus. I'm a mom, so I've been kicking myself, but also the medical profession. How could they not give us a heads up, a warning to watch for this during his recurrent middle ear infections as a youngster, or from the ENT that put 2 set of PE ventilation tubes in?
This site and some literature searches are preparing me to ask the right questions before the surgery, and the main one is concerning the prosthetics.I will confirm with the surgeon first, but he mentioned titanium prosthetics at the first appointment. He also referred to a 6-month re-check surgery for any recurrent growth of the ch-toma. Did you get your titanium prosthetics yet? Can you suggest some professional, peer-reviewed articles?
The surgeion did not talk about all of these awful post-op symptoms that I am reading about here; I am just sick that my son, a college freshman, may have his academics severely compromised by this.
This surgeon performs 3-4 of these/week and is double board-certified: Otolaryngology AND Neurotology. And I know one of his partners, so I believe that I am on the right track in that direction.
I noticed when reviewing this site that there are waaaay more posts and reads than actual replies. I thank you , and the Hawaii mother of the tennis player, for taking the time to interact, this interaction is a generous display of caring for total strangers, and offers one of the best comforts: KNOWLEDGE!
I hope to hear nothing but good news from you concerning your recovery,