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News: Cholesteatoma - Home Page
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 on: September 19, 2013, 01:09:16 AM 
Started by HoneyBuns - Last post by Omynasa7

 on: September 19, 2013, 12:57:08 AM 
Started by aimeee98 - Last post by Omynasa7

 on: September 11, 2013, 06:26:04 AM 
Started by Sloanna - Last post by Sloanna
Hi everyone!

I have just been diagnosed with this nasty little critter after many years of ear not feeling right!I guess I am lucky that after only three visits to the doctors I was refered to an ENT doctor who diagnosed it straight away. I have to go back and have my ear cleaned out in about three weeks time so he can get a better look and then I guess it might be scans etc before referal for surgery.
I have read just about everything I can find about it, sometimes it makes me feel more secure, sometimes scared out of my wits!
The question that is most in my mind at the moment is how long do you have to wait for surgery in England? I'm sure it is different for everyone but a ball park timeframe would be most helpfull.
I have a holiday to New York over New Years Eve planned ( a once in a lifetime event) and I really don't want to miss this. Do you think it's possible they will schedule for before Christmas?
Any help or advice would be most welcome!!

Thank you!  Grin

 on: September 10, 2013, 02:40:50 AM 
Started by elw1229 - Last post by Ozaruz22
I felt something.

 on: September 10, 2013, 02:34:56 AM 
Started by slsawyer - Last post by Ozaruz22
I felt something.

 on: September 08, 2013, 07:25:28 PM 
Started by LauraChesh - Last post by LauraChesh

 on: September 08, 2013, 05:01:36 PM 
Started by LauraChesh - Last post by rivrlivr
Douglas Bigelow in Philadelphia, PA HUP hospital.

 on: September 02, 2013, 08:11:36 PM 
Started by LauraChesh - Last post by LauraChesh
Hi, this is all new to me, my husband has a Cat scan scheduled tomorrow to verify he has a cholesteatoma. Can anyone recommend a great doctor? We live in NJ but will happily travel to tri-state area or further if needed.  I've read about a Doctor in Albany that does this surgery with lasar. Anyone have any input on Lasar surgury? Thanks!

 on: August 31, 2013, 08:06:33 PM 
Started by georgecorry - Last post by georgecorry
I had a CWD procedure done 25 years ago and have made annual visits to my ENT in Atlanta, Georgia for cleaning.  For several years, my doctor and I have discussed having my mastoid filled with a muscle flap to prevent periodic infections.  As an added bonus, I am told that it would somewhat improve my ears appearance.  I would like to know if anyone has had a similar procedure done and what I should expect from the results.  Thanking you in advance for your thoughts.  

 on: August 22, 2013, 08:25:23 PM 
Started by az602chick - Last post by az602chick
I found out in November of 2011 that I had a cholesteatoma in my right middle ear, and had probably had it for quite some time. I had my first surgery in January of 2012 and in a matter of 12 months I had seven different surgeries on my ear. I developed a severe case of staph infection as well and had to have a picc line put in, which was replaced four times before being removed. But because the infection was so persistent I then had to have a portacath placed in my chest, but it was not surgically put in correctly so I had to have it redone 2 weeks after it was first placed. I have definitely had a a tough couple of years. The dizziness and headaches are so bad i cannot function normally anymore. Between the cholesteatoma and the many surgeries i have lost all my hearing in my right ear and i no longer have a sense of balance. I have "dizzy attacks" randomly and cannot complete normal living tasks on my own anymore. I am no longer able to work or drive, cooking a meal or folding laundry has become too difficult to complete. I have lost my sense of independence and have learned that life does not always go as you planned it. I just turned 26 years old and have had to file for disability. I was a preschool teacher and ran an after school and summer program for special needs children, and can no longer work. And to top it all off I found out about a month ago I need to have surgery yet again on my ear because it is draining and they believe either the tumor or the infection is back. But because of the extensive amount of scar tissue the MRI cannot confirm either one, so surgery is my only choice. BUT my ENT/surgeon whom I have had since the verh beginning has taken a job in another state, so I now have to see a new doctor. That alone is making my nerves and anxiety out of control. I am just frustrated and miserable at this point!  Cry

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